Diary
My Diary is my catch-all category for posts that don't fit neatly into one of the other categories.
Our overwhelming concern
“Our overwhelming concern must be for the health and the well-being of all South Africans, particularly the poor, the elderly and the vulnerable. The actions we take and the decisions that we make must be informed by this imperative.”
President Cyril Ramaphosa
I completely support the COVID-19 lockdown decision, but the devil is in the detail. These past three days have been a mad scramble by disability activists try to find the right people in government to amend the regulations regarding transport and to address the needs of disabled people, especially SASSA grant recipients and other vulnerable people who are not in the care of paid service providers approved as Essential Services.
We knew that this whole thing was going to be messy, and now it is messy. We have to fix the mess and save lives.
As the regulations stand, there are many scenarios which make it impossible for caregivers to travel with their charges. Yesterday we established that it is possible to go to the police station for special permission, but for people on SASSA grants, such an additional trip can take an enormous chunk out of their food money, and some will have to get there ‘illegally’ before they can shop or access medical care. Besides, the millions of affected people were not informed about this procedure at all.
There are many other problems that make the job of staying alive very difficult now for the very people the president wanted to protect.
Right now, people are working on letters to ministers, to the papers, whoever they can find.
If you want to complain, do so with focus and guided by this overwhelming concern.
Sharing the words of non-speaking autists
I have undertaken to post a piece of writing, or a video or some other artefact every day from a nonspeaking autistic person who uses words or word-linked symbols to communicate.
In bed with ADHD
PREFRONTAL CORTEX: I understand that you didn't get enough rest, so you can stay in bed for another ten minutes, provided that you use that time to think about something that will make us all more efficient once we do actually get up — like what to wear, for...
Severe autism: How do you…?
You cultivate friendships with autistic people who have high support needs. You make yourself an ally to people who need help with feeding and self-care.