When they diagnosed your child with that disability, did they suggest that you make contact with as many people as possible who actually have that disability, and to read a great variety of their writings? Or did they just tell you to get support from (nondisabled) parents?
So let me tell you what that means, that thing where they only refer you to clinical specialists and parents and parent-led organisations: They don’t respect people with that disability. They don’t think their experiences and views are meaningful. They don’t respect your child.
Whatever advice they gave you may even be harmful to your child. I mean, how would you know?